My Cycle Story: A Research Study

Collecting Data Around Women’s Cycle Changes

(From June; but only just learned about it).

… stories and stories and stories of really horrible things happening to women – vaccinated and unvaccinated. And then all of a sudden… they deleted the accounts for the people who were sharing the stories, and they deleted all of the support groups…

… not only is that a serious problem – that you’re literally silencing women in 2021 – but also that something serious is going on, and if these anecdotal stories are just getting erased, then how can we prove that that’s even happening? …

We have to take these stories and we have to somehow turn them into data. Because if it’s data and we can publish this research, that’s not something that they can delete… So that’s why we created the My Cycle Story survey and just published the first paper.

Tiffany Parotto

Survey Results:

(DCS = Decidual Cast Shedding, “clinically known as membranous dysmenorrhea – is so rare that most people have never heard of it, including most health care workers. It describes a gynecological event…during which the decidua, or the thick mucous membrane that lines the uterus, is shed in full, intact form”

In the survey, 292 women (4.83 % of the sample) reported having experienced DCS. The mean age of these predominantly non-Hispanic white women was 36.1 ± 0.5 (SEM) years. Eleven percent were taking hormonal contraceptives, 94.3% considered themselves healthy and 96.2% reported that menstrual irregularities started in 2021. According to Google metadata, search terms for “decidual cast shedding” substantially increased during the months of April, May, and June 2021. These peaks in searches represented a 2000% increase over the first quarter of 2021.

Conclusions: There was a significant increase in self-reported DCS in the latter part of 2021 compared to all pre-pandemic cases. More research is urgently needed to investigate the factors contributing to DCS in 2021 and whether this trend is continuing.

Parotto T, Thorp JA, Hooker B, Mills PJ, Newman J, Murphy L, et al. COVID-19 and the surge in Decidual Cast Shedding. G Med Sci. 2022; 3(1): 107- 117 | The study: COVID-19 and the surge in Decidual Cast Shedding